While the non-health care staff are amazing and helpful, the doctors, nurses and PA's are not. They speak to you like you already know all the medical terms. Give a one sentence "explanation" of you pathology report. Then they get frustrated when you have questions.
They won't even answer the questions, they send you to patient advocacy that only says "we will forward your concerns to your care team". I have been sent back and forth between the 2 for the past mont. No one seems to give a $hit. Speaking of the patient advocacy departments. I have had my care team from 2 different specialties ask them to follow up with me. Several have asked for a supervisor to reach out to me. have only spoken to them 3 times and they will only say that they will forward my concerns to the care team. No supervisor has reached out to me.
If you have any anxiety or are neurodivergent in any way, RUN, don't walk, as far away as possible. You are simply a number and not a real patient. They have no idea how to communicate with human beings and are even worse with those that have anxiety.
The poor communication and lack of information is simply unacceptable. I learned more from the website for the Cleveland Clinic, My Pathology and Reddit than I did from my "care team" or patient advocacy.
In addition, they make you sign consent forms but do not read them or give you more than a one sentence overview (after your mind has shut down because you have 4-5 people touching you everywhere including inside your gown, without telling you what's happening). You also do not get a copy at anytime so that you can review them. And you're signing these "consents" with a freaking IV in your hand! Those are painful enough on the hand, much more so when you are trying to reach the other side of the bed and sign something. Of course, this is AFTER I told them that it is best if I am unable to see the IV and to keep it covered by the blanket!!
Edited to 1 star because 0 stars is not an option. The way I have been treated by this system is abhorrent. They basically called yesterday to tell me that they didn’t know what to do with me. They complained that no one has ever asked these questions before. So, because no one has asked before they don’t have...
Read moreWhere do I start. I heard nothing but good things about MD Anderson and was recommended to come for treatment. The initial encounter at the diagnostic center went pretty well. However, with the physicians, it was quite the opposite. For starters, why did I see the surgeon oncologist first!?!? Secondly, Dr Suarez-Colen was extremely rude! Extremely rough in her breast examination, even after I repeatedly told her that my Breast is painful to tough!! She said I’m sorry yet she continued examining me roughly. I truly wanted to hit her and say, I’m sorry. She was short!(only saw her for a whopping 10 minutes, maybe; I was left wondering why did I need to see her, MONEY). She Did not asked me if I had any questions and definitely did not treat me with kindness or compassion. Acted as if I wasn’t even human. Dr Bisen was robotic. Not personal at all. I felt like a specimen. He asked questions but never truly explained my current situation. They both only talked about the possible treatment stages.
I’m seriously considering returning to Dallas to look for another doctor team that cares about their patients especially their AFRICAN AMERICAN...
Read moreWe have had nothing but a 5-Star experience thus far. All doctors and staff have been wonderful. The only issue was pain management and they require in person visits and we live 2.5 hours away 1 direction.
If you are comfortable with technology like Apps and can access a smart phone or a computer with internet EVERYTHING is connected to MyChart. You can contact your various care teams and advocates through the MyChart portal. It's all neatly organized in one central location.
Another thing I have discovered over the past few years of dealing with health challenges...YOU need to know your insurance better than the finance people! There should not be any surprises if you know and understand your insurance.
I also think people need to have realistic expectations. Some people this is their Hail Mary and others like us started the journey here after being diagnosed locally. I don't expect a miracle for his stage iv we just want the best care to give him a fighting chance.
I would recommend any one who can start with a consult and go from there. We have had nothing but an excellent...
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