Stony Brook University Hospital — Local services in Town of Brookhaven

If I could give zero stars I would so this is my story of Stonybrook Hospital. For 6 months I have had episodes of collapsing and body paralysis. Every doctor and specialist has tossed me around like a doll and pin cushion looking for answers but with no evail . I have begged all of them to do an MRI of my lower lumbar spine because I have impingements and be compressed. My last MRI was done 1 1/2 years ago indicating in plain sight for all to read ! I have multiple auto immune and multiple chronic and degenerative conditions and yet nothing so this has continued . They do every other test under the son but not the one I’m begging for . Fast forward . The night before eventually deciding to go to Stonybrook I decided to talk a shower . Self care has been very difficult because of all my muscle and extremity weakness . Well I fell paralyzed in the shower from the neck down , on the way down I accidentally must have closed the drain the water kept going and I was alone with my puppy , my phone was in the other room . The water kept filling up and I could not move so I screamed to Siri to call my husband my best friend etc hoping she heard me : th tub filled all the way up and I started to go under and drown . By the grace of god , the universe or just dumb luck my arms regained movement and I was able to pull my body out of the tub to safety . My husband rushed home because Siri did hear me and found me cold naked and wet paralyzed on our bedroom floor . We didn’t go then because I was afraid of a large medical bill our deductible is sooo high and also every time I went to Mather the treated me well but does not have an MRI machine although they were willing to help me they couldn’t . The did tell me Stonybrook could .The next day was worse and very scary I collapsed again but this time my face drooped and like many other times my speech slurred and I could not move . After 45 min I regained some movement and my husband and I decided let’s call 911 . Managing this on our own me being home alone all day with no care as I collapse daily not able to feed myself , shower or anything lets just go . I could not bare to watch the pain in my husbands eyes anymore as I suffered . I just couldn’t .The ambulance and Stonybrook stroke team were there in minutes . I gave my medical history told them everything presented with muscle spasms sever that involved my whole body and syncope from the pain . They were all so kind to me from EMS to police to the stroke care team . When I got to Stonybrook the followed protocol as stroke treatment also grateful for that as well . The night staff treated me with kindness and respect . My nurse Jenn was amazing . The doctors too they assured me they would keep me and help me they were admitting me and would build a team of specialists to find out what’s going on as well as every test necessary. They were admitting me . I agreed in relief . The next morning at 630 before shift change my nurse came in explained everything to me and that they were waiting on a bed to move me upstairs . That my attending doctor would be in shortly to go over then plan .My night doctor came in he wa kind and said don’t worry we are going to help you the attending will take over with a team and you will leave here with answer and help .Then I had to use the rest room , I slowly walked stiff legged unable to even bend my knees to the bathroom with no help because the call bell was ignored for 30 min maybe shift change but still .Anyways before I made it my legs began to spasms and weak and I unit aide ( such a nice young man ) came running with a wheel chair . I sat in it thanked him and I cried in pain . 3 nurses were standing leaning against the wall laughing and talking their personal business and they saw me crying . The male nurse says to me condescending “ awe what’s wrong “ ? I said everything I have been experiencing told them all what had happened in the tub and to my face etc . He looks at me and says “ well for a woman that almost drowned it a tub you look mighty fine to me ! Abuse number...

Called they said no I didn’t need to stop to talk to concierge! Staff lied.

I generally avoid this place like it has the plague! They don’t do anything my drs send me in for ER and they have some real pieces of work who work here. Beware. I trust the emts and police and fire next door to me not this joint! This review is based off only today. Did the pulmonology test went great.

Everyone else registration and pulmonology check in, nurses who did the test all great. They all get 10/10 stars. Where your 2 stars are coming from.

Hated the front staff information and concierge zero / 0 stars for them! Rude and 0 / no customer service! If someone needs help they will ask. Do not be rude to them becausese you’re mad they didn’t stop to talk to you. I was given directions to go to information and then registration and then to floor 8. The concierge seemed optional! It is! The information lady made it seem concierge is not optional. Which is not true. Anyways both need retaining on job and how to deal with people with neurodivergent , autism, adhd, etc even more so with fragile patients I have heart lung and health issues I look young but I’m not! I’m just here for a test I’ve been here since 2018 12 times about for myself and dozens+ more times for my 2 special needs kids. And thanks to the rude front service my heart rate was up more than it should be. My lung test blood pressure was also up. So your stressing me out didn’t help my test! Learn to be polite and kind and helpful is not what you both were! Check too I didn’t do or say anything wrong to those two they both was in a bad mood and the next time I won’t be taking it I’ll just leave! Tell my drs I am canceled due to bad behavior by your staff. Because this is not the first time I had rude customer service at front. And if you really want me to talk to concierge then put it on her sign! Also the 3 lady’s at information 2 had no one waiting didn’t offer to help me either. Furthermore, the gentleman where you go through the metal detectors said do you know where you’re going and I said yes and then I kept going that should’ve told her I knew where I was going because she’s only feet away. She can hear me. But then her other coworker friends, even though I A mask on couldn’t supposedly hear me. I had to literally shout my phone number, so everyone in the room. Pretty big area can hear me which doesn’t seem very safe or protect my rights as a consumer to my privacy.

Also the security guard was a little annoying when I asked for help many times ignored me! Kept talking to coworkers. So 0 stars there.

Elevator screen is busted it doesn’t work so you have to use your knuckle to try and click it. It’s not fun with rheumatoid arthritis and Raynauds when it’s raining out. 0 stars for that. I did ask security for help.

I was informed that I can stop and talk to the patient advocate services but I try them years ago with a bad dr and they just defended the bad dr. Just like the information lady defending her bad coworker behavior justify it without actual justification! They were not slammed. They were not busy there was zero reason for me to have to engage concierge.

Further more I’m a patient who has breathing, lung and heart issues plus more. I have pots too! So stoping to chat is bad!

Now you may think it’s odd she so upset by this I am wearing a mask. I’m immune compromised. I have asthma among issues. I am there for a long pulmonary test. OK keep this in mind. And I have heart and other health issues!

So talking for me is very difficult to do to begin with making me have to stop and talk to an extra person for nothing is ridiculous and it’s ridiculous that I had to advocate for my issues that was going on there and they still wouldn’t listen Or understand even why. Becauze I was having higher heartbeat even higher heart rate from their stress causing me more anxiety then I had...

please, for the sake of you and your child, NEVER bring your child here. i'd give 0 stars if i could. they won't help you. they won't help your child. people as heartless and inhumane as the staff here should not be allowed to work with children. i was the patient, they forced an 2 ng-tubes into me (when i couldn't tolerate them and needed an nj), accused my parents of tampering with my feeds, and then called cps on them, when they've never done anything wrong to me. the cause of my weight loss was because of SMAS and SIBO, something they should have seen. especially when other hospitals were able to find the problem within a day or two. although i was unable to handle anything in my stomach at all, they forced me to take the tube feeds, despite me constantly vomiting for hours because of it. the only way they would remove the tube was if i vomited it up, or rip it out myself. and even then, it took them 1-2 days to replace it, and they placed an ND instead of an NJ, which flipped into my stomach because of my severe duodenal compression. it was left it like that until i had a g-tube and j-tube placement at another hospital. they kept me on iv-fluids, put me on and off tpn, because the doctors switch every week and none of them can talk to each other or agree with each other, and refused to release me for 3 months. whenever the doctors came in, they also brought along about 8 to 12 students, and talked about me like i wasn't even there. they treated me like i was an animal at the zoo. they also would forget to give me my pain medication when i needed it every 4 hours, usually bringing it 30 minutes – 2 hours later. my parents and i were made to feel threatend and afraid of the doctors who were supposed to be helping me. and seeing these reviews, the fact that we aren't the only ones who had cps wrongfully called on us is disgusting. although i do understand them not knowing much about SMAS due to how rare it is, if they can't figure out what's wrong, they don't admit their ignorance, they pin the blame on either the child, or the parents. they also manipulate you into thinking it's a psychiatric problem, like you aren't really sick. they tell you that "it's all in your head." i was 16 at the time, and before our experience there, i've never seen my parents sob like that, let alone seem that distraught. and once i was finally released, after begging and pleading with them to discharge me since they were doing nothing for me, they sent us an email basically telling us to never come back. like we did something wrong, when all my parents did was fight for me. look at the replies to the negative reviews. those alone show how little they care.

i've been diagnosed with c-ptsd, partially because of what they did to my family and i. the reoccuring nightmares are constant, and my biggest fear is being locked in that same prison-like hospital room again. even hearing the name "stonybrook" makes me feel sick to my stomach, even almost 2 years later.

the doctors at stonybrook hospital are the ones who abused me,...