This experience was painfully sad. I came into the ER because I was having trouble breathing due to a cold. I have an underlying medical condition that is exacerbated by other sickness. They're Periodic 'episodes' of paralysis and movements called, Myotonia. Again, I went to the ER as I was having trouble breathing from a cold and my 'episodes'were being triggered. I was NOT at the ER for my episodes. Since I know my episodes were being triggered by sickness I got out what I call, "my instructions" . That's a small medical card stating what is happening to my body and how to treat me.
As I walked from the parking lot to the ER lobby my body was being weaker and weaker and I could feel that my paralysis was kicking in. (Drop in potassium).
I handed the staff by medical instruction card and they waved it away telling me they needed my name and birthdate (my name is on the card.). I was having trouble breathing which in turn trouble speaking and furthermore now my episodes were kicking in from walking in. (I didn't anticipate that happening that quickly.)
I did my best to communicate with the severe shortness of breathe I was having. They directed me around the corner to triage. At which time my body was now going down fast. I can feel the drop in potassium and that leads to the episodes. Again I try to hand the medical staff the card as I am sure I'm going down now. They again brushed me off and told me, they don't need that, they need to ....Yada Yada yada. I went down. As they began to attend to me they didn't pay attention to what i said. That i was SHORT OF BREATHE and needed a breathing treatment. I had Ajay requested that SEVERAL times! They ignored my medical card.
As my episodes progressed to flailing, contorting and posturing some medical staff attempted to literally HOLD MY BODY down. That will only break a limb.
NOT ONE person had listened to my reason for coming. I was having severe shortness of breathe and no one was treating that!
I was now treated as if I was having an anxiety attack and was told to calm down, relax and breathe. They literally shut the lights off and pulled the door shut!!!!! NO ATTENTION to my shortness of breathe. And because I'm struggling with my episodes, which consisted of paralysis. I could address this!
FINALLY.... A PA came in and ordered an breathing treatment and xray.
I explained I had been sick for a week with a bad cold and the cough had picked up the last few days. That evening I had 2 spouts of 20 minute coughing stints. After the 2nd one I couldn't catch my breathe. There being the reason I was THERE!
All the staff treated me like I was having anxiety issues and dismissed my breathing concerns.
While explaining my medical episodes and begging a nurse to listen to me,. Trisha the RN went as far as to question, "Well, why aren't you taking your meds for your episodes then?". I ABOUT DIED!!!!! While tearing up and being so angry as her for dismissing me, I exclaimed that, "I DO! I take tons of potassium!!! I'm NOT HERE FOR MY EPISODES, IM HERE BECAUSE I'M HAVING TROUBLE BREATHING!"
I was finally given a breathing treatment and then could breathe enough to try to explain my episodes.
I went into detail and the nurse tried to tell me that ALL THE DRS there KNEW what my very rare condition was because the Drs there are so smart! Again totally ignoring my concerns. If ALL those ER Drs know about PP then they're smarter than MAYO, RUSH, UIC. and ALL the freaking hospitals I've been too that couldn't figure out what was wrong with my body (episodes).
I did not feel heard, respected, or even given the chance to be understood. That's VERY unfortunate. It's scary for someone, me who can't verbalize and or control my body movements. They just wanted to be in charge and right. Sadly!
I called FISH and,spoke to Tammy about my experience and concerns. I'll need to go to the ER in the future at some point and CERTAINLY would like that experience to be kind, respectful, professional and compassionate.
I look forward to meeting with the...
Read moreDoctor was a complete moron. Couldn’t answer one question without getting frustrated and changing the subject. He didn’t even know cialis is used to treat high blood pressure not just erectile distinction. I am 28 and compete in bodybuilding cialis is very beneficial for keeping blood pressure in check and I was prescribed it for blood pressure I also take a mild dose of testosterone because i compete in bodybuilding and I have a prescription for it. I also take an estrogen blocker to keep that hormone in check while running the testosterone. The man knew nothing about any of these things and I asked him to list individually how any of those compounds are going to kill me. He then got frustrated and changed the subject and told me I was going to drop dead any day. I only came in because I took a preworkout from another country and it contained things that made me too jittery and feeling of so I went to get checked on.i asked the doctor to type up everything he had just said to me and print it out for me along with my test results from my urine and blood test. They gave me a folder of papers I walked to my car open the folder and it’s all blank papers I went back in and demanded my results and his notes on what he said they told me he left for the day and could only give me my results which I got a second opinion on and was told I have nothing to worry about and got checked up the next days and the irregular heart beat was gone since the pre workout was out of my system. I see in the notes the doctor demanding I see a psychiatrist because he officially diagnosed me with severe body dysmorphia. He never once asked me how I felt about how I look. I love working out and bodybuilding and been happy with every stage along the way especially now. I’ve never hated my body or wanted to change it because I didn’t like it I only continue to body build and workout because I love the sport and love the process and it brings structure and discipline to my life my life has only gotten better since starting to workout. I do not believe I have body dysmorphia I think that was an insaine thing for him to say and only said it out of anger that I knew a lot about what I’m using and constsntly do blood work to make sure I’m not harming myself and how he couldn’t answer any of my question he just got angry and stormed out and wrote that out of spite. Not very professional and rude. Blocked out his name in photos wack job would probably sue me. But he needs to be educated on hormone therapy. And I need to never take German pre workout again. Going to post his doctors notes let’s see if they match up with our conversation that may or may not have...
Read moreI have had a few bad experiences before but nothing like this. I will NEVER return to this hospital. Somehow I was forgotten in the waiting room arrived at 8:15 in excruciating pain like probably one of the most painful nights of my life. I was scared by myself and nobody care nobody did anything to try to comfort me. Although they were busy I was completely disregarded. Laughed at when I went to check in window like it was some sort of joke. They did an x-ray to check for broken bones or a fracture however I told them I didn't fall or bump anything. I had precious sciatica issues and just think either a disc in my back slipped or herniated. I had told them sitting was making it worse so I was going to a little cubby hole area to try to lay out and get comfortable cause I hadn't slept for 2 days. I finally dozed off for about 1.5 to 2 hrs because apparently they forgot about me. I woke up to the nurse cutting my wrist band off. And later putting another one on me. As I wheeled my chair up to front desk it was a ghost town in the ER not a single patient in waiting room. So now more than likely I will be charged a double visit. Then when I finally got back the charge nurse asked me was I back again. And hadn't she seen be the night before. And hadn't realized I was just finally being seen and was forgotten about. I was basically rushed through everything in back. Didn't even try to find out what was wrong with me. So was wheeled out the door and basically told see ya. I could barely walk to my truck. I have blood in my urine and still in excruciating pain 4 days later now. Funny thing was after numerous time going to the nurse crying in pain she would say we won't forget about u I promise. Smh I only give 1 star cause u have to in order to post. I would give 10 NO stars if I could. So since I have to give 1 star I give that to the lady who came to get me for an x-ray at the very very beginning I believe she was an insistent to the x-ray tech. She was so very kind and sweet and sympathetic. The only positive part of my...
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