PAN Foundation — Local services in Washington

I have been asked to share my story about PAN. I was diagnosed with prostate cancer several years ago and felt I needed a more aggressive treatment. A doctor mentioned Orgovyx and I decided to try it. At first the drug cost me $30 a month but I was told by the pharmacy that when PAN met to vote I would probably get full coverage. I waited and two months later I was called and told my $60 in payments would be returned because the foundation was picking up the total costs to me. The drug itself did exactly what it was supposed to do and lowered my PSA from about 3 to .64. I had been warned there were some problems I might have, and I did find I had frequent hot flashes. Mostly after meals I would suddenly feel very warm and uncomfortable. I also found very minor changes in my toilet habits, hardly worth talking about, and often a sore back. I don't think the drug caused the back pain, but as an old medic I always look to see what was different and I did notice the pain was more prevalent, after the drug, but I also took a fall so that was a wash. I tried to find out how long I would be on the medicine and what the final results would be, but that was more difficult. I heard sometimes 11 months, sometimes longer. Would I be cured, probably not, what we seemed to be doing was just slowing the growth of the cancer. After six months as the hot flashes got a tiny bit worse and for the first time I noticed some dampness, the beginning of sweat. I started to debate continuing the use of the drug. Because I did not see any cure at the end of treatment I did so. The drug did its job, but the flashes just convinced me to quit. The Pan Foundation did exactly what it said it would do and I received no bills for the drug. I still don't know if I was right or wrong, but since I never had any pain from the cancer, I just thought I would go back to...

I was diagnosed with CLL about eight years ago and chose the option of a single pill, Imbruvica, vs the route of infusions and chemo treatments. Until about three years ago my coverage for this very expensive daily pill was covered by my wife's insurance. I retired in 2015. Once she retired in 2021 my specialty pharmacy put me in touch with PAN Foundation and helped me secure a grant to cover beyond what Plan D did. Like all plans things have to renew at the beginning of the year. 2022 was a close year but I had another Foundation to help with the costs. In the beginning of 2023 it looked like all no Foundations had opened to help with this drug. I had to face the first two months of 2023 with out of pocket coverage, pretty much eating most of Social Security monthly stipend. HOWEVER, PAN Foundation kept sending me emails about possible help. My pharmacy kept checking for me and nothing opened. I reached out to PAN in early 2023, got on their waiting list and miraculously they opened funding for my drug within a few days. After supplying some minor financial information I was approved and given a grant to cover the rest of 2023. I passed this along to my pharmacy and now I don't pay anything! PAN Foundation saved me twice from what's an almost $30,000/month cost. Thank you PAN Foundation for helping me and...

Hello this is a Joel Wisotsky and I’m going to use this opportunity to let you know about a problem that I’ve been having a with the Pan Foundation on getting reimbursement for items that I think I should be reimbursed or I have sent in these items numerous times through your organization and they’ve been rejected numerous times for reasons like secondary payment cannot be issued and eligible a legible copy of your primary EOB must be submitted to consider these charges the proper the the pharmacy label is missing a copy of the label must be submitted to be considered for these charges. I supplied all of these documents numerous times what I’m trying to get reimbursed for is my albuterol HFA 90 mg inhaler and my trilogy elliptical 200 Jeff 6.5 inhaler. The total I’m asking for is $370.66. The items were purchased on February 9 and February 13 , I keep sending in all the requested documents and I always get a reply that they rejected it. For some reason that is not valid I’ve called up your help center people and a number of them have gone over it and and they have re-submitted the claims agreeing with me that the reason for the rejection were not valid I would sincerely Asked that you please look into this matter and help me get reimbursed for it. Thank...