University College Hospital — Local services in London

My husband Devon started admission into UCLH and Hospital for Neurology from December 2024 and had a very rare illness that the doctors found very difficult to diagnose. He was treated well sometimes and mistreated sometimes.

Some of the nurses, healtcare assistants and support workers, mostly from African countries, were nice and did the job out of passion while some were just about the money or opportunity and could not care less.

He was in and out of hospital and from April to July 2025, his condition worsened and so he had to remain in UCLH without any discharge from April to July. Now that's a very long time to be in hospital.

He was on one on one and I want to commend the Good Healthcare Assistants like HCA Esther, HCA Kate from Neurology who sometimescame over to cover in UCLH, Support Worker Aziz and that Lovely Yoruba female Support Worker, I cant remember your name. You guys really took care of Devon and made sure that he was ok and i really appreciate you all. Thank you so much.

To the other good Nurses, Healthcare Assistants, Dieticians, Food Servers, Ward Managers & Managing Assistants and Doctors & Junior Doctors who made sure that Devon did not suffer, A special thanks to you all as well.

To the African Support Workers and Cleaners who thought that intimidating and humiliating Devon because he had no control over his bowels after the near death experience and had to wear pampers or sometimes could not help the accidents that he did on himself or shouted at him asking him why did he have the accident or forced him to clean it up by himself, knowing his poor condition, I hope that one day, you yourselves get to experience the same things that you put Devon through.

It was so inhumane, so cruel, so wicked to shout at a very ill man for doing a number 2 in his pampers because he could not control his bowel or humiliating him to the point that he became so scared that he would quickly try to clean up the floor himself fearing that humiliation, even to the point that he passed out on the floor a few times. He reported it, absolutely nothing was done about it.

You guys thought that Devon was in hospital too long and so after some time, you started mistreating him. With the exception of the few that were mentioned before. You all wanted him out at any cost and made his life miserable......this is a very ill man who had a very active life before becoming ill, was never lazy. I wonder where your conscience are. Do you guys not have father's, brothers, uncles, husbands?

UCLH is one of the best hospitals in London, I do agree. However, with just a few horrible staff that has no passion for the job and just there for opportunity or money, the standards of the hospital will go very low very quickly.

If you dont have a passion for caring, you cannot care for another. I know this as I myself, I'm also in the health sector. Alot of you are inhumane and because of your background, despite this is UK, where things are done differently, some of you still carry this bad background with you even here in UK and it's so bad.

If someone is ill, that person should be made to feel better and not worse, not intimidated or humiliated when you are being paid to do the job. Why are you there if you don't like it? For opportunity? For money? That is not cool. Not...

After a complex situation involving multiple hospitals/clinics, the UCLH have not taken any responsibility for a missed diagnosis. Whilst they were not solely involved, the other care provider has also denied fault. Both care providers have clinicians working across both establishments. In Dec 24 I identified an abscess in my own MRI - images that had been viewed by multiple clinicians. At this point I’d been living with horrendous ongoing urine infections for over 6 years and had developed resistance to multiple antibiotics. I was eventually referred to the UCLH and was supposedly discussed at an MDT in August 24. It is now October and I still have not received a letter regarding the outcome. Apparently said letter was sent to the referring clinician. I have contacted them twice requesting the letter and both times I’ve been informed they are chasing it. Initially, I was told the letter was on the My Care app - the app I’d checked many times awaiting the MDT outcome. It would not surprise me if they have sent it to the wrong person or uploaded it to the wrong My Care account. Unfortunately, I have no choice but pursue care at this hospital. If I could go to another one with different clinicians, I would. I will certainly be leaving as soon as I’ve left theatre and will not spend a minute longer in their “care” than is absolutely necessary. To say I cannot trust any of them is an understatement.

UPDATE:

After I caused the hospital 2/3 times for a response regarding the prom rod the MDT, I ended up contacting the General Manger. She sent me the MDT letter which was dated the 5.8.24. She sent me the letter on 16.10.24!!! It took over two months to be sent a letter after I’d been chasing it for weeks. The outcome of the letter was shocking… I’ve been told the cyst (abscess) is unlikely to be obstructing my urethra and therefore there’s no point in removing it. I’ve been recommended a test to see if it is obstructing my urethra, which we already know it isn’t… and therefore I’m being asked to go through a traumatic and completely pointless experience. THEY HAVE RECOMMENDED ROUTINE MANAGEMENT OF UTIS… FOR A URETHRAL ABSCESS!!! I have been taking antibiotics daily for 7 years next month. When I stop taking them, the abscess drains into my urethra and I get a UTI. The UTIs are a symptom of the abscess. The abscess needs to be removed.

Sadly, this is yet another example of the NHS failing. By them accepting I have an issue they need to resolve, it’s highlighting an issue that should have been managed as part of my ongoing care 7 years ago.

Living with a hot, painful abscess in my perineum for 7 years has been awful. Without daily antibiotics, I’d be house bound, I had to give up my career because of this condition and have considered taking my own life more times than I can remember. I want to live my life - I just want my life back so I can enjoy time with my daughter. I have been plagued with this issue for over 3/4 of her life.

The clinic that caused the infection in the first place has been equally as unhelpful. Sadly, I have found the Consultants to be far too arrogant to care. I have reported every organisation involved to the Parliamentary and Health Ombudsman and will report every clinician involved to the GMC. This cannot happen to...

Failed to action referrals to other departments which would have helped me control and managed my health conditions overall symptoms. My Gp asked them 2.5 years ago t make such referrals in house and I have been debating with them t do a ever since. Causing me much stress, making my conditions worse and all along I have had to sit with unmanaged joint pain which a an additional spar f my condition that the hospital has failed to explore, listen to me about o make the requested referrals. I Have been back a forth with them about making such referrals and the have never done so nor do they get back to me. I had th team I need to be referred to make contact with my lungs specialist team manage today only for her manage to call me back and tell me t go back t my gp and ask them t refer met the other department. When they can do it themselves in house and such have done so when they first saw me in 2021. I have an auto-immune condition and the stress causes my immune system to go into overdrive. So the hospital covering my care shoul understand this since they are the ones that told me this me a they themselves should not be the ones adding t my stress since they took over the care of my current health Condition since 2021. They fails to give me a medication that could help me and one cal gave me one to deal with the lung oar of my condition and stated to me that it would make me put on weighed and they also trusting manipulate me into getting the covid vaccine even after telling me they don’t know how my body would take to the vaccine. A dr cried in front of me and my daughter telling me if O card about my kids I would take the vac as I would die if I did not. Two weeks later O came down with Covid it hit me bad and guess what I am still fully alive and still have never had the vac. This was clearly them trying to manipulate a sick patient into getting the vac which I always told them I did not want nor did I trust In. The quality of care for me as their patient is a sham, Inadequate and highly unprofessional and the dr that crud about the vac that was borderline manipulative of a vunerabl patient. I have not seen my specialty in person for a long whip van though. Lee making requests t do so which ar ignored on the my care app. Nor have I had the ongoing bloods that should take by 3 months since the end of 2022 and they have failed to give me the yearly lung function test. Which I should be having since the first lung function test in 2021. Therefore I will now be asking for my health issue to be card for and referred to a competent hospital with competent and caring staff who will do what is necessary to help me manage my pain and overall symptoms of my health condition. Clearly I can not trust them to provide the care that they and I clearly...