I recently had my first appointment at MD Anderson. I was excited to be able to go here since they are supposed to be leading in cancer research. My first appointment and lack of contact since has been beyond disappointing as well as disconcerting. One of my appointments was an hour and a half behind schedule, of course this was after I had to sit in a cold room stripped from the waist up. At the same appointment that day I was told by a radiologist (NOT my doctor) that my original pathologist was wrong and misdiagnosed me. I therefore requested to reschedule my surgical consult until MD Anderson could contact me in regards to did I need the surgery, did I need another biopsy or did I need nothing. I called and was placed on hold for over 25 minutes, but of course no one answered and there was no voicemail for me to leave a message. So I proceeded to My Chart to request a reschedule and for someone to talk to me about what was going on. I waited past the 2 day time My Chart said it would take at most for someone to contact me and still no one contacted. So I tried calling again, this time was on hold for over 40 minutes and yet no one answered and no voicemail. I then messaged my doctor via My Chart and still no response. It is bad enough to be diagnosed with cancer, then to be told you were misdiagnosed by a radiologist and not my doctor (who I still have never spoken with or met) then to have no one contact you to find out whether you do or do not have cancer, whether you need a second biopsy or surgery or whether nothing needs to be done. Oh but it gets better, feeling anxious, as most people would be at this point, I log into My Chart hoping to see a response from anyone, or test/lab results or my documents that were sent in so I can see what someone, anyone is referring to...but the only thing I found because of course nothing else has been uploaded was an INCORRECT initial diagnosis someone entered, I presume mistakenly into My Chart. So is this why the radiologist said I had been misdiagnosed because the diagnosis typed into my chart was NOT mine? Either way I have tried to call again to figure out about my reschedule, seeing results and actually speaking to a person, anyone to find out what is going on and once again I was placed on hold...this time I hung up after 30 minutes. MD Anderson was supposed to be amazing and yet no one can contact me about my health and I guess there is no voicemail for me to access...so I lay here in limbo not knowing what is going on and MD Anderson cares so little that no one can email or call. Very disappointing. I would NOT recommend going here...it is not worth the...
Ā Ā Ā Read moreI recently had a lumpectomy in August from another doctor. I still have pain in my left breast. With me being only 25 I decided to go to the best of the best hoping that they would help me. They did not. I had an MRI without and with contrast here at MD Anderson I lit up in two places. They did a biopsy. It was benign in those two places. I got referred to the surgical oncologist ABIGAIL CAUDLE. I expressed to her my concerns how scared I am of dying due to how aggressive breast cancer is in my family and its every generation. With me already having three benign breast tumors, I was asking for a double mastectomy to prevent cancer or anymore painful tumors that are growing. I am in pain and don't want these other two benign tumors left in my breast. Dr Caudle told me that I was lucky that the general surgeon removed my first tumor because she would've left it in there just like she's leaving the other two spots. I expressed that I cannot take Tamoxifen due to me, still having my ovaries and how ovarian cancer runs in my family too. Dr Caudles response was "that's okay". its not okay. I do not wanna die. I would like to see my kids graduate, my grandma and great grandma died at an early age from breast cancer. Dr Caudle did not wanna listen to any of my concerns. She also basically told me it was in my head that it could be menstrual cycles or caffeine and I do not drink caffeine due to sleeping issues. And it is not my menstrual cycles I know my body, and I know something's not right. I have the same side effects as my grandma and I didn't even know what hers were until my mom told me right after I told her what mine are. I've been traveling from Louisiana. I feel like they just wanted my money and didn't wanna help me. Here I am still in pain. I don't know what to...
Ā Ā Ā Read moreI am from Nashville Tennessee and have had my cancer treated by Dr Ueno, Dr Woodward and Dr Black and Dr Clemins. There are no words to describe the outstanding care I have received from each member of my team and all the people who make it possible for the Doctors to be so wonderful. Dr Ueno has an amazing women named Angela how always took time to talk with me and make me feel at ease as did Dr Lisa and of course Dr Ueno. Dr Ueno is a compassionate man who takes as much time as one needs to have all the questions one may have answered. I never felt intimidated, I always felt like I could ask any question no matter how stupid I thought it may sound. Dr Ueno is so patient and so compassionate, I felt like I was his only patient. I never felt afraid under the care of any of these wonderful people. The receptionist Rita always treated myself and others with a kind smile and a beautiful light. Dr Woodard and Monica were so compassionate as I went through radiation, and even called me in the evening to see how I was doing. The girls who gave the radiation were all upbeat and gentle as was Renee Henry my physical therapist. The ladies at the desk of the radiation check-in were so amazing how they remembered each persons name and said hello with a big smile before you even made it to the desk.I felt incredibly at peace and ease because the communication and kindness and most of all the Doctors clearly see each person as an individual, not a number. I flew every three weeks from TN for treatment and had my suregery at Md and all My radiation. I would not have changed one single thing about my care. Wonderful people. All Of them. Other hospitals and offices could certainly benefit from following the same protocol as...
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